633 Love Letter Created & Donated
Love Letter to EB Patient Initative
The "Love Letter to EB Patient" initiative is a new project launched in the spring of 2024. As a student-led nonprofit, we recognized the struggles of children battling the rare genetic disease Epidermolysis Bullosa (EB) within often-overlooked communities. In response, we began sending warmth and support through personalized "Love Letters" in both digital and physical forms. To date, we have created over 633 cards, impacting more than 67 EB patients and bringing moments of joy to their lives.
Bare & Brave
In the summer,we launched our first social media campaign, Bare & Brave, aimed at breaking the stigma surrounding natural skin conditions. Through a powerful combination of personal stories and testimonies from individuals who have faced judgment due to societal misconceptions, we sought to bridge the gap in understanding about these conditions.
Motivated by a desire to dismantle this stigma, I started the campaign on our Instagram platform. To my amazement, over 50 high school volunteers from my organization, spanning countries across the globe, joined forces to share their experiences. Some participants courageously posted photos of their skin conditions along with heartfelt accounts of their journeys. As a result, we collected over 3150+ story views!
While many issues surrounding skin health often go overlooked, I strongly believe that by coming together and sharing these personal stories, we can collectively spark meaningful change and foster greater awareness.
61 Skin Health Video Lecture Created & Donated
Skin health education is often limited, rarely included in standard curricula, and difficult to access in some communities. Additionally, online information can sometimes be inaccurate, potentially causing harm. To bring reliable skin health education to a broader audience, our dedicated volunteers—driven by curiosity, commitment, and care for others—have created over 61 skin-health-focused lectures. Each lecture is video recorded and shared with shelters worldwide, helping to spread awareness and promote healthy skin practices in underserved communities.
Empower knowledge about skin health
Teach A Lesson to Youth Program
Teach a Lesson to Youth is an in-person program dedicated to educating young audiences about skin health through engaging and age-appropriate lessons. Our lectures are tailored to diverse age groups, ranging from kindergarteners to high school students, and are conducted in children’s centers, elementary schools, daycare facilities, and high school club meetings. Each chapter's president will organize "workshop trip" throughout the school year and in the summer to different communities to spread knowledge and awareness.
For younger participants, we incorporate hands-on activities to make learning interactive and fun, ensuring a thorough understanding of dermatology concepts in an engaging way. This program strives to make skin health knowledge more accessible within our communities, raising awareness about the importance of caring for one’s skin and promoting overall well-being.
Fundrasing for EB Research
Epidermolysis Bullosa (EB) is a rare genetic skin disease that causes the skin to become extremely fragile, leading to painful blisters and wounds from even minor friction or injury. Despite its life-altering impact, EB remains significantly under-researched, with many of its causes still unknown. However, research efforts are ongoing at renowned institutions like Northwestern's Paller Lab, where Vivian Xu, the founder of Skin Wellness for ALL, is actively learning about EB. Inspired by this mission, we are committed to raising awareness and funds to support EB research and improve the lives of those affected.
Our fundraising efforts take multiple creative forms. For example, the Irvine branch of Skin Wellness for ALL has launched the Matcha Sell initiative. Volunteers and team members come together to operate a small pop-up cart offering hand-whisked matcha drinks, ranging from traditional matcha green tea to flavored matcha lattes. We host these events in serene park locations, creating a welcoming space for community members to chat, learn about EB, and enjoy delicious drinks. Check our website for updates on our next Matcha Sell event!
Additionally, we are collaborating with DEBRA, a leading EB-focused nonprofit, to host an art contest aimed at raising awareness and funds. Students are invited to create artwork inspired by EB, which will be showcased in exhibits at school libraries, local public libraries, and community centers. All proceeds from this initiative will go directly to DEBRA to support EB research and advocacy. The art exhibit will run from spring 2025 through the summer, and we encourage everyone to participate or attend to support this important cause.
By coming together, we can make a meaningful impact on EB research and awareness. Join us in supporting this effort and being part of the change!